Life through love.

I rolled over and swiped my phone to see the time. It was already 9.

I hadn’t slept this long in….well so long I can’t tell you how long its been. Kevin knowing I needed the rest took care of the boys.

I sat up and the rush to my head and the return of the throbbing brought all of the feelings from yesterday back into focus.

I walked out to the hall and peeked my head in the boys room to see Aiden was still sleeping peacefully…seeing him at peace brought comfort and a twinge of pain. When he is asleep he is free of all the things that wreck havoc on him…he deserves that peace all of the time and after yesterday we learned that even in his sleep he might not be “free”.

I walked down stairs and was greeted by two of my smiley little boys, they chirped, “Hi Mama!!”

I looked at Kevin and his eyes matched my tired aching heart but he smiled and warmth and hope filled me for a second.

I walked into the bathroom and looked up into the mirror for the first time since yesterday.

Mascara still marked where yesterday’s river of tears flowed.

My eyes stung and were so puffy I looked like I had been in a fight.

Yesterday Aiden was diagnosed with Infantile Spasms.

It is the most catastrophic form of childhood epilepsy. High mortality rate. It robs you of your child. Traps them in a state of constant chaos even when they aren’t seizing, unlike other forms of epilepsy where brain waves can return to normal between seizing. The treatment is harsh. So harsh it is one of the reasons for the high mortality rate. Not treating it is accepting Aiden will be like this forever, as a “lost” newborn or be taken from us due to this condition. Treating him means it could not work, wreck havoc on him and take him from us…if treatment does work this condition can morph into another severe type of epilepsy.

Earlier this year Kevin and I noticed Aiden making a weird movement, at first it was just here or there. Like he was spooked.

Then it was more and more. Aiden has CP and is spastic with his movements and he can’t move his limbs freely so we weren’t quite sure what to make of these movements but they didn’t sit right with us.

Around the same time Aiden stopped visually tracking. Aiden used to track you from across the room. He adored his mobile and crib mat I got for helping develop neurologically…then one day he didn’t.

One day he stopped making eye contact. One day he just wasn’t “there”. It was like he was lost.

It was like someone turned the light out in my little boy.

We had a neurology appointment and we talked about the regression, his neurologist even said she was shocked he wasn’t tracking as he was at his last check up. But she chalked it up to CP. We were concerned because we knew CP and PVL (his brain damage from organ failure) did not progress or cause regression. When she asked if he was having seizures (we were told to watch for lip smacking and eye movement) we said we didn’t know but he wasn’t lip smacking or having rapid shaking eye movements. When we raised concerns again about the regression she brushed it off saying sometimes it happens…which it does not.

At that appointment we were very disrespected. At his previous appointment with that neurologist we asked about CP and we were dismissed. At this appointment we were told as our neuro walked in, “he has CP, this is severe CP…”
She didn’t say hello, examine him, talk to us, she just began talking to the student in the room. Hearing it was a punch to the gut, we knew…we were the ones pushing for the diagnosis but still to hear CP and in that manner was painful. No family should be handed a diagnosis that life changing like that. She wasn’t even speaking to us.

At the end of the appointment she said, “I hope that you do not put him in something and leave him in another room and forget about him and play with your other normal children and write him off as slow.”

It was as if someone sucked the air out of the room when she said that.

Here we were, pushing to get a CP diagnosis to get into the CP clinic…we had been pushing to get him more help than just county offered services. Here we were asking why he wasn’t tracking and what that meant and how alarmed we were. And that is what she had for us.

A lump in my throat formed, my voice quivered and my eyes were brimmed with tears.

“We don’t and we would never.”

I started almost trying to defend our parenting, “He loves patty cake…he loves to swing….he loves to play with his brothers…he loves when we sing to him and let him lay on our chest to feel the vibrations…”
I stopped I was angry, I was either going to start sobbing or yelling.

I took a deep breath and I said, “Even if he can’t do the things his brothers do we include him, in story time, singing, playing…they include him too…not just us…his grandparents…Aiden is not forgotten or written off he is a part of our family.”

When we left that appointment we cried in the parking garage.

We felt helpless.

These are the people that were supposed to be helping us. Helping Aiden. They were supposed to be the ones telling us what to watch for, looking for warning signs and red flags.

We know now that in a child with PVL or CP, the regression that we were bringing to her attention should have been met with testing and investigation. A simple EEG.

After that appointment she said to follow up in 6 months. SIX MONTHS.

At that point we made the decision to take Aiden to another hospital and begin researching on our own.

Through researching I came across a benign sounding condition called Infantile Spasms.

They sounded to me like something an infant would have that is normal. I clicked on the video. It matched what Aiden was doing. It looks harmless. Aiden’s arms come into a “hug”, his legs flex and he looks over his shoulder like he is “spooked”.

I innocently typed Infantile Spasms into my Google search bar.

Reading and learning about IS literally made me ill.

The room spun. Kevin was sitting across the room from me. My lip was quivering. Tears were filling my eyes. After reading the first article on it I couldn’t go any further than researching how to get it diagnosed. I just couldn’t.

I didn’t want to read mortality rates, about treatments that could wreck havoc on his fragile body, I didn’t want to cross that bridge unless I had to. And we prayed hard that night and every night after that we wouldn’t have to cross that bridge.

In the time we waited to get into the new neurology department Aiden got sick. He came down with the GI virus that put him in the hospital without food for 5 days.

His spasms seemed to get much worse. We now know hunger makes these spasms worse.

He had his episodes and clusters in front of nurses, doctors and residents. I asked numerous times and I was told not to worry and assured that they were not seizures and to just forget about it.

Instead I took videos.

I took them of Aiden in the hospital bed seizing or as the said “just being spooked”.

I took those videos to his new neurology team and asked for an EEG. They agreed. They immediately were alarmed that he wasn’t tracking and regressed. They agreed with every fear and concern I had. We went from being dismissed to being valued and heard.

In waiting for the EEG Aiden got sick again. This time we avoided the hospital but not with out a full 3 days of round the clock dropping pedialyte into his mouth every 10-15 minutes and over a week of recovery time.

We finally got to the EEG.

We drove out to Cincinnati for the appointment as soon as I sat down in the waiting room with Aiden he began to seize. I ran up to the desk and told them and they rushed us back.

While he seized for a while they just missed the episode because it takes a while to get 27 electrodes hooked up. But thankfully they got to see first hand what we were concerned about.

The 25 minute test turned into a 2 hours long test…

I sat in the room holding Aiden, feeding him, trying to console him (he did NOT like the electrodes or his little gauze hat).

My heart was racing. This was it. What I had been fighting for. I knew in my heart he needed this test. I just begged that I was wrong on why he needed it.

I turned to the nurse adminisering the test and said, “I know we didn’t get a spasm on the test but when will I know if he has hypsarrhythmia?”

Her face did that face I’ve come to loathe. The face that creates a pit in my stomach. The face that says all I need to know.

Her eyes became sentimental, her lips curled into a half smile. Trying to convey comfort but one confirming my fears and she sighed. She had that “you already know” face.

“Do you have a medical backgroud? Are you a nurse by chance?”

“No, just a mom that knows not to blindly trust. It is what 5 months in the NICU does to you.”

She told me someone would read his results within the afternoon and get back to us either today or within the week at the start of the appointment….after I mentioned the hypsarrhythmia she left the room to speak to a nurse.

But she was actually paging the person that would be reading the test at the hospital to read the result immediately to confirm what I feared….hypsarrhythmia.

She came back and told me that is what she was doing because she wanted us to have the results and that they were just as important to them as they were to us and she wanted to make sure we knew that.

She came back and turned on the lights and told me a nurse would be calling to speak to me, just then the phone rang and I answered.

She echoed everything I knew in my gut.

I thought I would be prepared to hear it.

But I didn’t account for my heart pleading with my brain to be wrong.

Fighting and advocating for your child leaves little time to grieve or cry or even let it sink in.

Getting him that EEG was all that mattered, getting a team to listen to our concerns was all that mattered.

But there I was holding Aiden in one arm, a phone in the other listening to a nurse spell out what I typed into that Google search bar months ago.

Infantile Spasms.

They wanted to admit him as soon as possible but understood we might not be able to due to money, time and being two hours away that day.

They wanted to administer ACTH to him which is an extremely harsh drug. It is a gel that is injected into his muscle twice a day, one that is meant to shock his brain out of the hypsarrhythmia. It also can causes GI bleeds, can cause congestive heart failure would cause immunosupression and electrolyte imbalances, could cause sepsis, causes them to become inconsolable and irritated, hungry but never full amongst many other heartbreaking and terrifying side effects and risks.

After I hung up the phone the sweet nurse administering the EEG took Aiden…she washed his hair and combed it. She cooed at him and handed him back to me and said, “you are such a good mama, you caught this and we can do this together…it is a lot though….are you ok?”

I looked at her and tried to say yes but my voice cracked. I nodded my head firmly trying to will back the tears but they came any ways.

I held Aiden tight to my chest and she swallowed us up in a big hug. I started to cry.

I walked down the halls, Aiden’s wet curls tucked under my chin trying to not cry. I reached the first family restroom and rushed in.

I pressed my back against the wall and cried hard for 5 minutes and continued through the halls.

I walked out to our van. Kevin was in the van with Noah and Evan and he saw my face. He already knew from the time I was in there it wasn’t good. I saw his face consumed in worry but trying to be positive for Noah and Evan who were having a blast “driving” the van or as Noah put it his “rocket”.

I sat in the front seat and the tears began to flow harder. I closed my eyes tight with Aiden held snug and said, “I just wanted to be wrong.”

I called our family, got advise, support, they cried and I cried more.

After trying to wrap my brain around that afternoon and getting back home I used the number the nurse gave me and talked to them about how fragile Aiden was…that RSV and GI viruses have nearly killed him with the immune system he has…that his GI system is already compromised. They were so kind and thankful that we brought that to their attention because they agreed ACTH is probably not the first line of defense for him. The amount of compassion and care they had was amazing. They thanked me for researching, for knowing about this condition, for questioning them. They were so supportive.

They told us we could meet this week and figure out Aiden’s plan.

Last night I was mad…yelling…crying…researching…had a talk with God… I was and am mad that our family has taken every single bad diagnosis in stride. We didn’t say it wasn’t fair when we were told he was deaf. We didn’t say it wasn’t fair when they told me he wouldn’t talk. We didn’t say it wasn’t fair when they said he would not walk.

But THIS….this is unfair.

I felt I lost Aiden in the NICU…the Aiden I thought I would have…the identical twins I thought I was having. That probably sounds confusing to most but it was important I let go of the baby I thought we were having..important I let go of the identical twin comparison. Losing the future I thought he would have, that he deserved, that I wanted for him was hard to grieve. But it was important that I accept that Aiden was who Aiden was supposed to be no matter what his future held or conditions he faced. 

All I wanted was Aiden…I would take him in any way I could but I just wanted Aiden. 

So I held firm to that.

But then one day Aiden disappeared. That light in my fiery little boys eyes vanished. My little Aiden bug was gone.

This IS stole my baby from me….I feel like I’ve lost him twice.

He is trapped in a shell, lost in this choas in his brain.

Kevin and I have not stopped trying to crack that shell or find him in there since the day that light went out.

The thing is until yesterday I thought that light would come back but after getting the official diagnosis and digging deep into the research, crossing the bridge I prayed so hard we wouldn’t have to, now I am afraid it wont.

It kills me. I miss my son.

I am sad for the life he is left with. I want him to have a full life. I want him to experience life. I don’t want him to be trapped.

You can have a full life and not walk or talk…we were ok with that but this….him not being able to experience life….that he may die from this…that he is lost and miserable right now in a Hell I can’t imagine. It kills me.

This is not fair.  

He isn’t even two. He hasn’t had a chance to just be a baby. He has known more pain and struggle in his life that most will in a life time.

Last night I took my doctor hat off, I took my advocate hat off, I took the mama bear hat off and I was just Aiden’s mama.

I cried. I held him. Breathed him in and stroked his hair. He laid in bed with us far after our other two littles were fast asleep.

I allowed myself time to mourn and grieve.

And when I did that he comforted me.

This sweet little “lost” boy comforted me.

He with all his might reached up his stiff arm and tightly clenched fist and held it to my face and smiled. It fell and he thrust it up again. Something incredibly hard for him to do.

Kevin brought his face close and Aiden reached out to touch his face with his other hand and he let out a laugh.

Sometimes when we look at the paper…the diagnosis…read the medical journals it is easy to get lost and succumb to the fear and dread of the black and white statistics and prognoses.

Then this sweet boy reaches out and with his hands says, “I am here mom and dad….I am here”.

So we will fight. We just aren’t sure what that fight is going to look like. We are afraid and overwhelmed. But we know he is in there and my God we might be able to turn the light on in his eyes again. But even if we can’t we are going to love this little miracle with all we have and keep praying for another miracle.

Because even though his brain is “static” and even though we are told he isn’t “there” I know with all of my mama heart that love crosses those barriers with ease and even if he can’t experience everything we wish he could he will experience love. Unwavering, unconditional, overwhelming, amazing love. He will feel life through our love.

He is as ok as he can be.

Recently I came across a blog that really hit home. A fellow mama posted a link to it. This mama and I live states away but connected during our NICU stay and life after the NICU. Having someone out there that understood the life of a NICU family was so comforting. Even though we live miles apart those miles didn’t seem so far when I saw all of my friends welcoming their second babies, smiling faces, swaddling blankets, coming home on day three from the hospital. Holding their babies just after birth just as I did Noah…I felt eons away from that reality I so desperately wanted. So a few states away or one facebook message away wasn’t all that far.

The title of the blog was, “But She’s Healthy Now Right?”

The title alone had me catch my breath.

I struggle with this daily. Every time we go out. “He is ok now though right?”, “good to have your boys all fine and no worries now!”, “he will catch up and be chasing his brothers in no time!” Or “he is almost 2?? He crawls right?”, “glad that is behind you, huh?”, “aren’t you glad you are out of the newborn stage?” And on and on and on and on.

When no…we aren’t out of the “newborn stage” and nothing is behind us. We aren’t in the “clear”. He doesn’t crawl, barely can hold his head up and still eats from a bottle and doesn’t tolerate regular food and is on a very special diet. Just one of his bottles that he has to have a minimum of three of cost $8 each, they are nearly 450 calories a bottle with 11 grams of protein in each. Trust me I know how exhausting the newborn phase is, I’ve been living it for nearly three years now with that short break right before the twins were born. So take that newborn phase and add on some medical chaos and a million appointments, live that for a year with no end in sight and come back and tell me how grueling that 6 month newborn phase is.

I never know what to say…people don’t know what to do with the truth and don’t often want to hear the truth. That this sweet gorgeous curly haired blue eyed boy isn’t “ok”, yes we aren’t in the hospital right now…but he is not ok. People don’t even know what CP or PVL are…they don’t know about NEC or short gut or seizures or auditory neuropathy.

I say the words brain damaged and they often recoil in horror.

People don’t want to hear the answer to why isn’t he responding to me saying his name…he is deaf.

People don’t want to hear the answer to why won’t he look at me, just let me try (clapping, waving, dancing, etc.)….no, it wont work he is blind.

People don’t want to hear why his identical twin is more than double his size and the struggle we face daily to get him to gain weight….that he has no large intestine and short gut syndrome. Sometimes I like to think maybe I should invite these people over for short gut diaper duty…or wish they would have been there in the beginning for the 20 poopy diapers a day (at least) and trying to control a diaper rash that was more like a 3rd degree burn up until he was 1. Maybe then they would understand why he weighs “just” 16 pounds. To us it is more like, “Aiden weighs a whopping SIXTEEN POUNDS!!! He has cheeks to pinch! I can’t count every rib in his chest! HE HAS FAT!! He is GROWING!” Or maybe I should just start saying, “you would have a hard time gaining weight if you had diarrhea 10 times a day too.”

I never want people to feel uncomfortable. I know they aren’t meaning to open old wounds. I know they don’t know they are the sixth person asking me the same question that I’ve encountered that day alone and I am just trying to get my kids to the park or grab a few quick things at the store. I know that they mean well.

But sometimes I just want to say its ok to not be ok. That I don’t want to hold my son to the standard of not being “ok”. That he is more than all the things stacked against him. That he is more than a diagnosis. That we are just at the park. We are just at the store. That I don’t know you. That he is just a kid, just like his brothers.

I guess what I am getting at is please, before you speak, before you ask “what is wrong” or “everything is ok now?” that you need to be prepared for the person to not smile and say that everything is ok. That when you ask why my son is so small or why he is so different than his twin and want a neat, nice, warm little answer that ends with a happy ending that I struggle because I don’t know what to tell you. “I would really like to fill you in on prematurity, the 5 month NICU stay, NEC, PDA openings, spesis, DIC, organ failure, PVL, auditory neuropathy, infantile spasms or epilepsy (we aren’t sure yet) and our fears and battles in the future and present BUT I would LOVE to just grab the bananas, milk and cheese I came in here for without rehashing my child’s medical history and triggering my PTSD. K, thanks!”

Think about what the result of your words or questions will be good or bad. Are you just curious? Does it matter if we’ve made to that ever elusive “ok” – does that change how adorable he is? Does it change his infectious smile? If you are just a passer by, you don’t need to know the details to pray or wish someone well or admire a babies smile or child’s laugh. Think about that family and if they are at the park trying to have fun or at the store rushing to get grocery shopping done with three kids (which is already NEVER easy) and think about how your words will affect that. Think about your largest struggle in your life and wonder if you would want to be asked to explain it every time you ventured in public.

I know there will always be people who ask pregnant women if they are having twins, when they aren’t. People asking if your pregnant, when you aren’t. People asking when you will have kids when you either don’t want kids or you desperately do and wonder the very same thing. People don’t mean to stick their foot in their mouths, but it doesn’t mean it doesn’t hurt or strike a nerve.

And not all questions are bad. Not all concern strikes that nerve. Our neighbors, friends, community and more have asked and offered help. Been there to celebrate a good day and been a shoulder to cry on for the bad. They have been in it for the good and the bad and walk with us. It is small talk. The nosy nature of wanting to know just to know.

I never know what to say, the truth is, it is day to day, minute to minute and we are thankful for each one because he was given less than a 1% chance live. So no he isn’t “ok” or “normal” or what many would call “healthy” but he is here and that is all that matters. 

So I take a deep breath and say, “he is as ok as he can be right now.” Because isn’t that the best any of us can do?








The Teall’s do the Indianapolis Zoo and Indianapolis Children’s Museum

Getting out of the house to the grocery store or to the park with three kids under the age of three is hard, planning a day trip full of activities, impossible – right?




Once I started doing some digging I found that we are smack dab in the middle of some pretty great kid getaways. There are places right in our backyard like the National Museum of the US Air Force and places far enough away to be real getaways but close enough to do in a weekend like the Indianapolis Zoo and Children’s Museum.


These trips sounded daunting at first but really once we looked into them we found a lot of them would be easier than a walk in the park for us…literally.


This past October we took an impromptu trip (planned the night before we left) to Indianapolis. We made it an overnight trip but it easily could have been a day trip. We chose to make it an overnight trip because A) we sadly had to cancel our original vacation to Hilton Head a few days prior due to Kevin getting very sick and wanted to “get away” B) we wanted to make sure to hit Indianapolis Children’s Museum and the Indianapolis Zoo and devote full days to those activities. We made sure to stay at a hotel with a pool which to the kids was an experience in and of itself.


We hit the Zoo the first day because the next day it was supposed to rain. Zoo’s are kid friendly enough as is but this one really was easy to spend the day at. There were plenty of places to stop and feed the kids or take a break. This particular zoo was very stroller friendly as well which as a mom we three kids (two of whom can’t walk) is a life saver.


The exhibits were super kid friendly too. Noah could see the animals without having to be put on our shoulders and the twins could easily see the animals from the stroller, which was like a vacation for mom and dad’s arms!



The exhibits were amazing, we particularly loved the lion exhibit. Noah was a little scared because the lion was a little…rowdy and pretty vocal but after we were a little further away and he felt less like he was being viewed as a lion snack all he did was roar and act like a lion.  Click here to see that rowdy lion in action, seriously it is worth your while I just can’t figure out how to get Instagram videos on my blog: Rowdy Lion, Roaring Lion

We loved the mix of indoor and outdoor exhibits. We visited on a perfect fall day and didn’t need relief from the heat or the cold but we made note of it because that is always a must for us with three littles plus it makes this zoo a great go to in the off season.



One of our favorite indoor exhibits was the Dolphin Cave, Noah was so excited her ran around racing the dolphins. 




After spending the day at the Zoo we headed back the the hotel (right across from the Colts field which Noah and Kevin were ecstatic about) ate dinner, watched movies and swam.



The next day we woke up bright and early and made our way to The Indianapolis Children’s Museum.


This stop was a hit from the second we pulled up, I mean hello….there is a gigantic Brontosaurus (Apatosaurus for you Dino Dan buffs) scaling and going into the museum. Dinos are a big deal in this house…the boys honestly could have skipped going in and spent the entire day marveling over their long necked friend but little did they know more dinos were inside waiting to be explored.



Noah was mesmerized when we entered the museum. Giant dinos and a sky high transformer waiting to greet us…we were blowing their minds with this visit and it didn’t stop there. The kids were fully fascinated the entire trip.



The biggest hit was the kid zone. While the entire museum is geared toward kids there is an exhibit, well I say exhibit but it is really more like an entire zone dedicated to the littlest Indianapolis Children’s Museum visitors. It is called the Playplace. It is in the perfect location as the twins were over being in the stroller and it gave Noah a place to run and be free as a toddler could want to be to get his mid day grumpies out (those grumpies were no where to be seen after we stepped foot in the Playplace!).


There are areas for babies (crawler friendly) which was a huge hit for us. I could let Aiden and Evan play in their foam baby pit all the while watching Noah explore rushing rapids, make music and practice his engineering skills at a ball wall obstacle course.




This zone was a huge hit. They had private cubicles for mom’s needing to feed their littles and diaper changing zones right outside the family restrooms located IN THE PLAYPLACE I could change the twins diapers all the while watching Noah. That might not sound like a big deal but to not have to panic about getting everyone in to the family restroom, watching Noah like a hawk so that he doesn’t touch anything in the restroom and spend about 20 minutes changing and redressing and accessing everyone was a life saver.



As a mom I thought this zone was ingenious. It was obvious a lot of thought went into the planning and creating of this zone. This zone was made for little kids to feel like they could explore, play and learn at their pace, their way and not be in the way or making a mess or breaking any rules. As a mom all I had to do was keep an eye on them and enjoy watching them have fun and for me that is priceless. The twins actually played so hard in the playplace they took an extra nap! 


We walked the entire museum and did the Dinosphere twice! We’ve got a little paleontologist on our hands we couldn’t resist going through twice (plus they have a wonderful food court WITH Starbucks drinks offered!! Parent power up!!)



The trip was easily planned, it was a super easy drive, relaxing, refreshing and one that we wont soon forget. Kevin and I felt like we broke our every day routine and got to “get away” to Indiana and it was our first out of town experience as a couple on our own if you can believe that.


The boys were happily exhausted by the end of the trip and slept the two hour car ride home and we left early enough they slept almost the entire way there too.

Not to mention this trip is crazy affordable and there are always great packages available through to suit your trip!

We can’t recommend this trip enough and can’t wait to do it again!

Our boys were all smiles!! 






Our visits were sponsored by The Indianapolis Zoo and The Indianapolis Children’s Museum.

DIY wood pallet important dates or best days of our lives sign.

Due to an overwhelming response to my latest DIY project I shared on Facebook and Instagram I wanted to share with you all how easy it is to make your own best days of our lives sign.



I had seen a lot of important dates signs floating around on Pinterest and Etsy but none of them were exactly what I wanted for the space I had.


We have a large area next to our fireplace that needed filed. We already have two gallery walls, so instead of risking the chance of that corner of the living room feeling cluttered I wanted something large but meaningful.


I wanted something that would make me smile and make me feel grateful. When I came across the important dates signs I knew that was it.


That was about a year ago.


I don’t own a Cricut (as much as I wish I did) and I didn’t want to buy a stencil to do it, nor did I like the look of stencils. 


So I just kept lusting after all those signs that came through my Pinterest feed…then one day a link to how to transfer ink popped up in my feed with just regular old printer paper and a jet ink printer.


My husband knows the way to my heart and luckily he came home that week with a perfect pallet for the project. All the slats were already next to each other and with cutting it down a bit it would be perfect.


All that I had to do was pick out my fonts, dates, wording and format the printing for the project.


The project took me about two hours to complete or in my world 1 extra long miracle triple nap from the boys, plus 30 minutes of patient toddler crafting while I finished it up.


First I picked the dates and wording.


I started out by making a mock up in Word on my computer.


I kept it small at first so I could see the over all look and played with the fonts.


I knew I wanted to use something more industrial for the numbers and something that resembled calligraphy for the wording ( I used Courier New for the dates and Eyes Wide Shut for the script).


I finally got everything formatted the way I liked it and was ready to print.


This step shouldn’t have been as tedious or hard as it was.BUT I have a cheepy ink jet printer…like it costs $20 with the ink in it.


To get the ink to transfer to the wood you have to make sure the ink will be touching the wood…the way you do this is to print the wording in a mirror image.


Normally this is just a setting when you go to print and option you can chose in the settings or properties…I was not so lucky.


There was no mirror image option.


So I busted out my good old MS paint skills. I did screen shots of my font and pasted and cut them in MS paint then used the flip horizontal option under rotate on the tool bar and printed from there.



Since I wanted my font to be pretty big (size 300) I had to do it by sections.


Once I had it all printed I went about figuring out the placement by laying it all, like a rough draft.


Once I figured out my spacing I started the process of transferring.


I laid the paper ink side down and used a wet paint brush to dampen the paper.


You want to get the paper wet but not soaked enough that the paper will dissolve.


Once I wet the section of paper I wanted to start transferring I used the back side of a plastic paint brush to run the ink areas to get the ink to transfer.


The ink transfers really well (not to gloss paint or glossy surfaces though!) you can leave it as is (black) or go over it with paint as I did. You just have to make sure to rub all areas of the font, when the paper is wet it is easy to see where the letters and numbers are (that doesn’t show up well in pictures!).



I was tempted to leave it black but I thought white would work better with our living room.


I just went in with some left over white paint and I had the look I was going for!



I trimmed down the pallet after the paint dried and that is it!


I love that the sign is a constant reminder of how much a day can change your life and I can look and see all the best days of my life and be reminded just how blessed I am!

Since this sign is pretty big we haven’t hung it yet, I want to make sure to get anchors but I was eager to share it all with you before! 

Feel free to reach out if you have any questions and share your signs if you decide to give it a try!! 


Our mini DIYer

Noah has been taking up “projects” all week using his toy tools to do things around the house. You can tell he pays attention when Kevin and I do projects because the entire time he is doing these projects he is saying, “Oh man!!!! Uh oh! Oh no! Oops! It’s an ouchie! ( Which to him means I hurt myself )”






Catching our breath.

Kevin called on his way home from work. He could tell I was distracted.

I hadn’t expected him home as I thought he was working a later shift but I had his schedule mixed up.

He asked if everything was ok.

I told him I couldn’t talk that Aiden was acting weird and something just wasn’t right.

He said he would be home soon and I hung up the phone.

I grabbed the hospital grade suction machine we have and used it on him and got nothing, even though he sounded terribly congested.  I then put him in his bath seat.

Aiden loves baths, they are the magic fix all for him.

The CP causes him to be so tight all of the time takes quite a toll on him and relaxing in the warm water offers some relief from that.

He calmed down and seemed to be doing a little better.

I hadn’t made dinner it was already 8pm. I was swaddling Aiden and rocking him trying to figure out dinner with Noah at my feet, tugging at my shirt, “EAT! EAT!” doing the sign for eat over and over. He heard the door and ran from the kitchen. I heard the excited squeals from Noah, “PEEEEZZZZA!!! PEEEEZZZAAAAA!!! DADDDDYYYY PEEEEZZZZAAAA!!!”

Ok. One problem solved I thought.

Aiden was comfortable and relaxed after the bath, I dressed him and put him in his rocker right next to me while we ate dinner.

His breathing was calm, his hands folded together over his chest, totally relaxed and following the rise and fall of his chest.

I told Kevin, “keep an eye on him, something just isn’t quite right. He has had a funny cough that started up this evening and his retractions looked a little worse right before his bath.”

He looked him over and noted he was barely retracting at all and seemed peaceful.

We both did the mental, “whew, thank God,” sigh of relief.

But about 15 minutes later he awoke from that quiet sleep with the same peculiar cough I had heard earlier, but this time he couldn’t really get himself out of it.

I got out a stethoscope and listened to his lungs and while I am no doctor or nurse I knew something wasn’t right. One side sounded noticeably different.

We packed up the boys with the thought of heading to Urgent Care but realized it was a Sunday and they were closed.

Kevin called his mom who is a NP and asked if she could listen to him as she only lives a block away.

Aiden is a funny case, retractions are normal for him, noisy breathing is normal for him, but this was just a little worse. Having someone that knows Aiden is beyond helpful because taking Aiden in without knowing his baseline would land him in the ER. Something as simple as croup can sound terrifying when it comes to Aiden and we didn’t want to expose him to the ER unless we had to.

She listened to him and she confirmed our gut feeling. He needed to be seen.

We left the other two boys with his parents and rushed to the ER.

I sat in the back with Aiden, it was dark and I couldn’t see him well so I kept my hand over his chest to feel him breathing.

It was steady but he was stressed. I turned the light on and unzipped his outfit after I felt his rib pulling in a way I couldn’t believe. He started to have substernal retractions. It looked as if he had a golf ball on top of his sternum every time he took a breath in.

It looked as if his heart was literally trying to come out of his chest.

I told Kevin to just pull in front of the doors of the ER and I would get out and he could follow.

I got out of the car and Aiden looked at me and I pulled the blanket over his head to shield him from the wind.

I made probably 15 steps from the car to the doors.

I walked in and there was someone in front of us signing in. The nurses made eye contact with me and immediately stood up and I blurted out, “he is having trouble breathing, he 3 months premature, he has BPD.”

Just then I pulled him down off my shoulder and he wasn’t breathing.

I called out to him as the nurses surrounded me.


The nurses called for more help and gave directions to each other.

“Aiden?? Aiden!!”

My voice sounded like it was coming from someone else.

I pushed on his chest and rubbed my knuckles against his sternum.

His arms fell at his side limp. For him and his CP that is near impossible for him, something was very wrong.

The nurses started moving us to the trauma room and after a few tries they finally heard breath sounds.

He began breathing again but was still not coming to.

They had me lay him on the bed. He looked so tiny.

I began to rattle through his symptoms and his medical history.

People filled the room.

So much of the time in that room was a blur.

He came to once they began sticking him with needles trying to get an IV and began deep suctioning him. What they were getting out they called “cement”. The amount they got out they could not even believe.

He fought through every second of them working on him.

He would hold his breath and his muscles would spasm and he would arch his back and his raspy voice whaling out in pain.

His body began to be covered in broken blood vessels, he was so stressed he wasn’t breathing, they kept having to blow in his face.

Kevin filled out the forms. I couldn’t.

I just kept watching the faces of the people working on him looking for answers.

They asked us to wait in another room and I refused to leave.

I was shaking, tears falling, flash backs from the NICU when he was going into organ failure were flooding my brain.

The alarms. All of the tubes. Blood gasses. Xrays. IVs.

It all was a nightmare.

They began to get cultures on him for everything they could think of to see what we were up against.

After what felt like an eternity people began leaving the room.

The doctor in charge of his care said that they needed to get him in my arms ASAP because she knew it would level out his stats.

They handed him to me and he was covered in blood.

They had stuck him so many times.

I held him close to my heart, kissed his sweaty forehead and breathed him in.

His stats began to normalize.

Another nurse came into the room to take over for the other and in their conversation with each other they said, “RSV positive”.

“Wait. RSV positive? He gets the shots….he isn’t held by anyone besides us, his grandparents and nurses and doctors….we stopped doing group speech for our toddler so we wouldn’t be bringing in the germs….I don’t get it.”

They apologized and said they had seen it a lot this year.

They wheeled me sitting on the bed holding Aiden up to the PICU.

Kevin stayed with Aiden while I left the room and called our families and gave them updates.

Aiden was so tired from fighting, he actually fell asleep.

It was nearing 4am and I pulled out the couch so Kevin could get some sleep before work the next day, he still was going to have to go home and get changed because he was still in his work clothes from the day before.

I fell asleep sometime after Kevin left in the morning for an hour.

I couldn’t let my mind rest. The familiar clammy plastic couch pull out bed. The sound of alarms breaking night. It felt like the nights where we weren’t sure he would make it through.

It all felt so surreal.

A nurse came in the room to tell me to not beat myself up, that it really was a phenomenal thing that this was his first hospital stay since leaving the NICU and that he was just needing basic supportive care.

We were there from Sunday through Wednesday.

He did really well with his stay. Everyone remarked how well he was doing and that he was such a strong fighter for everything he had been through.

He began having secondary issues the second night we were there. He started feeling well enough to realize he did not want to be at the hospital and was stressed about it.

His GI systems is so sensitive any change in diet or stress will be shown via his GI system.

He started dumping. He would have a bottle and make a diaper before he finished it with that bottle.

They were not adding rice cereal to his bottles to slow his food down and that with the stress created a very bad GI problem for him.

On Tuesday I barked up enough trees to get him his rice cereal and it helped but the stress was still overwhelming for him.

Any hospital stay is a stressful one. The shuffling around of Noah and Evan. The schedules arrangements. The exhausting job of being an advocate for a very unique little boy.

Having to retell every step of his history to every new nurse or doctor we came across.

Seeing your child stressed, in pain and exhausted.

Thankfully we have an amazing support system of friends and family that are there for us at a moment’s notice. Kevin could still go to work, we could still spend time with Noah and Evan who were very upset that Aiden wasn’t home. My mom took shifts being with Aiden after he was stable so we could not totally throw off Evan and Noah, it was so helpful to know what wonderful hands Aiden was in when we left to go see Noah and Evan….such wonderful hands he was rarely put down. It was so comforting to see him realize she was there, he has vision and hearing problems but when he smells her he lights up.

We had frustrating moments at the hospital. Like when a resident came in and asked us if he was struggling so much because of having Downs….which he does not have. That same resident also so tastefully stated that Aiden, “came out the hole with style” because his hair naturally turns up like a Mohawk.

But we had good moments like when a NICU nurse came by to visit (even though we missed her!) it is just nice to know how much she actually cares even all this time late and nurses that went above and beyond for Aiden and us and of course them being able to make the interventions they needed so he could stabilize.

Aiden has been at home for about 4 days now and has really been doing wonderful. That first night he was home was like night and day. He stopped dumping and spent a good chunk of the evening laughing and smiling. Putting him in his crib next to Evan, Evan kept pointing at Aiden and clapping and Aiden almost melted into his bed. The familiar smell and comfort was almost like medicine for him. We hooked up our monitor that tells us if he stops breathing or moving to give us some extra reassurance.

It is easy to lose my breath thinking about the evening that brought us to the hospital.

But that night we were in the exact place we needed to be at the exact moment we needed to be there.

I know that somehow we were blessed with that gut feeling to know something wasn’t right and to act on it.

And that is what has given Kevin and I peace. It is hard to erase the image of your child not breathing from your mind and all of the “what ifs” that go along with it.

But knowing that by some means we were blessed with that sense, that awareness and understanding is what has given us the chance to catch our breath.

And in catching our breath we can just be thankful. 


FINALLY able to eat! He told the entire floor about how it had been 18 hours since his last bottle!


His first morning in the PICU feeling much better.


It is hard to see but that was the last day we were there and the petechiae (broken blood vessels) starting to resolve across his chest and face but they are still pretty bad.



Super happy that Daddy could come spend the afternoon!



Grandma made sure his crib was colorful with lots of balloons!



Only way he wanted to sleep, I can’t blame him hospital beds are awful!


Last day!


Dad got off work just in time to take us home!



You did it Aiden! We are going home!!

Wake me up when September ends.

Days like today are hard.

Days when I can think back over the last 25 years and remember each September 4th.

The reason it is hard is because this one you won’t be here. You won’t be here for your birthday..

Can we just go back?

Can we got back to being me at age 2 and you new born? My real live baby doll?

Can we go back to being 4 and 2, you were my tag along, my best friend.

Can we go back to 6 and 4, when my biggest worry was what you would do all day while I was in school?

Can we go back to 8 and 6, when we would ride the school bus together and talk about our day on the ride home? I loved walking from my last class to pick you up and sharing our day together, it was the best part of my day.

Can we go back to 10 and 8, when we rocked out to Hanson and Spice Girls? And we had out own band…

Can we go back to 12 and 10, when our worlds turned upside down but at least we had each other?

Can we go back to 14 and 12 and 16 and 14 and have less teenage bickering? I think mom and dad would appreciate that too.

Can we go back to 18 and 16 and have lunch again at our table…I looked forward to it every day.

Can we go back to 20 and 18 and dance with you again at my wedding? Just a little longer…savor that moment a little more.

Can we go back to 22 and 20 and can I listen to you play guitar again? You had such talent.

Can we go back to 24 and 22 and have you hold Noah for the first time longer….he loved you so.

Can we go back to 26 and 24 and not let life get between us like it did…we both needed each other so bad.

Can there please be more? Can’t we do 28 and and 26…

27 and 24 can’t be it…

Can we go back and hug more..

Can we go back so I can tell you I love you more…

Can we go back so I could some how undo all of this?

Can we just go any day that had you in it?


After a night of running around trying to get some errands done without the kiddos for the first time in months. 

Kevin: I don’t know what to do with my arms when we are out without kids.

Me: I know it is like when you push your hands against a door frame and you let go and they just start to rise…I feel like I have to fight my hands from flailing around awkwardly.

Simple Slow Cooker Teriyaki Pork & Potatoes

This is one of my fave go to meals.


It appeases my hubby’s love a good meat and potatoes meal after a long day at work and I love it because pork is lean and pretty healthy, Noah adores the carrots and it makes for killer left overs all week.


Not to mention I make this in the morning while my coffee is brewing and it is all done and in the pot before my first cup is ready – whats not to love about that?


Teriyaki Pork with Potatoes & Carrots 




1 teriyaki marinated pork loin (we get ours from Kroger)


3 – 4 lbs bag of golden potatoes (honestly I just shove as many as I can in the crock pot)


½ (or more) of a bag of baby carrots


½ cup OJ or fresh squeeze orange juice


Place the pork in the bottom of the crock pot add in the OJ (make sure to get out all the marinade from the bag, use a little water to get it all)

Throw in the desired amount of baby carrots (they are a big hit in this house so we use a lot!)


Clean and quarter your potatoes and throw them in


Turn on low (for 7-9 hours or until pork is 165 degrees and potatoes are tender) or high for 4-6 hours (again make sure everything is nice and ready!). If it gets too dry too soon you can add small amounts of water or broth to keep it moist. I toss the potatoes around occasionally – but you don’t have to…especially if you don’t cram a million in the pot like I do….my guys like potatoes.  


We salt and pepper after it comes out to limit how much salt we add in it over all.



We serve it up with a loaf of our favorite sourdough bread from Panera…seriously, even though I worked there for years and Kevin still does there is nothing better than a loaf of Panera sourdough bread (lets be real, I could eat a loaf with a bottle of wine for dinner and be happy – but that isn’t very family friendly). I make sure Kevin buys one before he heads home on these crock pot nights.


While this dinner is amazing on the first night, the next day it makes for a great wrap in a tortilla or on a bun…or on more sourdough bread!


Noah isn’t crazy about meat yet and he really digs into this dish and for a grazing toddler who seems to live on air – nothing makes a mama happier!


And for a tired and hungry husband to give it the I’ll take thirds and fourths, I need a pair of Joey Tribbiani eating pants seal of approval that makes me feel a little bit better about him getting home to a crazy messy, loud house!

everyone needs a pair of eating pants.

everyone needs a pair of eating pants.

Now excuse me while I go dig out two pairs of “eating pants” and dig in!

Kevin and Dominique plus 3

Posts have been few and far between here.


For many reasons, but one mostly.


Having a 2 year old and infant twins is hella hard.


There is no amount of sleep (not that we get any), no amount of caffeine that can touch the constant heavy blanket of fatigue that is over Kevin and I.


There for when we do have spare energy I usually don’t spend it blogging.


My brain cells have been in survival mode since the twins came home. I don’t normally have enough to spare to form a lucid thought let alone an entire witty blog post or one that isn’t just a short:




My days are spent with Dora, Elmo and keeping up with the Duncan’s not the Kardashians.


I usually feel like a haphazard mess when we do get out of the house and then our outing usually end up feeling haphazardly disastrous so any attempt at feeling “normal” is just a vicious circle of haphazardness.


I want to blog, really if I ever should have been blogging about my life to document for my family/show the kids later in life so they don’t gripe when I tell them to clean their rooms or at least serve as entertainment for others it should be now.


Our life could be a reality show.


Sometimes when I am waving my white flag at the kids and trying to down my fifth cup of coffee before they lunge another attack at me I think about the Goslin gang and I try to whine less or at least try my best to not be Kate Goslin-ish.


Sometimes when things happen that would be full of canned laughter on our imaginary television show I don’t see it as funny at the time.


For example…recently someone sold us a rigged stroller off craigslist. We got scammed. Before we realized we had been duped we (I) decided it would be wonderful if we took our entire family to the local farmers market. I think I forgot I don’t live in Pinterestlandia and this is the kind of thinking that gets us into haphazardness and that I actually have 3 boys…2 infant boys and a 2 year old that don’t really dig farmers markets or being in public, well at least not behaving in public. The stroller was acting funny on our walk with all three boys strapped in and finally as soon as we got to the farmers market it broke. In the middle of the entrance. A huge, semi tractor trailer of a stroller that weighs almost 100 pounds broke with all three kids in it in the entrance to the farmers market. We sat on the ground and tried to fix it but it didn’t work, we figured we would just carry the boys around, enjoy the farmers market and then figure out how to fix it when we were done. You know make the best out of a bad situation. WRONG.


It was totally broken, not going back together, the previous owner used GLUE in the sockets so it would work to be shown not used.


So we had to walk home. We weren’t terribly far from home but when you insert Noah mourning (raging over) the death of his balloon animal he got at the farmers market and the fact that the twins are near impossible to hold together at the same time and they both decided they were hungry as we were leaving and wanted to tell the world about it, oh and it was a nice 95 deathly degrees out we might as well have been states away from our home.


Kevin carried Noah at first and I carried the twins. About a block away from the market Noah took his box of milk and squirted it over Kevin’s head and I was losing the twins. He couldn’t understand why I couldn’t just keep them up (there is an I told you so coming up) and I hoped taking the one that could hang on instead of slide down me like a greased pole would be better.


WRONG, wrong, wrong, wrongy, wrongy, WRONG!


Noah brought his wiggles guitar to the market and would not leave it with the stroller and was carrying it while being held. And by carrying it, I mean hitting me in the face with it most of the walk home.


Sweat dripping down my face, I am 99.9% I have not only developed asthma on this walk but am now having an asthma attack and am in fact dying and all I can hear are the cries of my seemingly feral 2 year old and the ever so overly cheerful wiggles singing, “fruit salad, yummy yummy, fruit/fruit/fruit/fruit salad yummy yummy.” (Note: the repeat is the smashing of the guitar on my face restarting the song)


I look up and Kevin, who was so sure the twins would be easier is carrying them like footballs by his hips.


We look at each other and through parental telekinesis tell Kevin to go ahead since his load was lighter and not waging an all out war against him. He shuffled home and I took a break from carrying the wild alligator, I mean my toddler home.


I stood Noah up on the sidewalk and waged the mom maneuver of I can do this all day kid attitude. We stared at each other for about five minutes and I asked him to walk and he did. He then realized it was hella hot outside after three houses and he did not want to walk and put his arms up for me to carry him.


So I mustered up what little energy I had left and carried him home, the last stretch wasn’t as bad, I think Noah was even tired of his antics by this point.


We got inside and all I could hear was my heart pounding in my head. Kevin left to go get the stroller with the van. Noah came up and hugged me and patted me on the back and asked for milk.


I got him milk, trying not to curse the fact that he had just dumped a box of milk that cost as much as a half gallon of milk out from Starbucks on Kevin’s head and down the front of my shirt.


I then sat down on the computer and updated my status on Facebook.


Dominique Teall

We bought a triple stroller yesterday and decided to take it out today to the farmers market…as soon as we pulled up the wheels popped off and wouldn’t go back on. We carried all three boys, one screaming after the death of his balloon animal all the way home. 
Worst (non medical) experience as a parent to date.



Immediately people started commenting how funny it was.


I closed the computer, irritated and pouting and went to self loath and hide the Wiggles guitar.


I cooled down….realized I myself was throwing a temper tantrum of the emo type and realized it actually was pretty funny.


Although when I hear the wiggles I do have PTSD flash backs of that walk I do laugh a little.


We are trying to sort ourselves out and adjust to our life of Kevin and Dominique plus 3. While it doesn’t sound as daunting or catchy as Jon and Kate plus 8…somedays…ok all days it feels just as hard.


So forgive me for the lack of updates, if we are being honest let all just applaud that Kevin and I are still alive.


Hopefully on top of surviving there will be blogging too.