Right now both boys are still critical, we are still on that tight rope of any moment could change it all. We also face starting feeds again eventually on both which could cause the NEC to come back. Aiden had his entire large intestine removed, we don’t want the NEC to come back and take any more of his intestines or for him to fight any more than he has had to. Aiden will be having heart surgery, the date is still to be determined. Evan’s xrays have gone back and forth on positive and negative for the NEC, so he is still battling it but we are hoping the fact that it isn’t an obvious positive is good thing.
This period of holding our breath is terribly difficult but every second that goes by that is good trumps all the pain and worry. It is hard to complain about how hard it is on our end of it all when we aren’t the ones fighting this battle, it just hurts so much to see my two babies in such pain and having to fight such a hard battle.
Please keep praying for our two strong and brave boys, all the prayers are making a difference. We have been extremely hard to reach in all of this, cell phones aren’t allowed in the NICU most of the time and we aren’t online much at all. Right now we are just in survival mode pushing ahead trying to figure out how best to be there for all three of our boys, we haven’t taken time to answer voice mails, emails, messages or even pay our bills or grocery shop so please don’t think we aren’t thankful because we are. We are so thankful for every ounce of positivity and prayer sent our way, we just have so little time in each day and right now we just can’t pull ourselves from our boys more than a few quick updates here and there.
Thank you again, all of you.
Keep the love, prayer and coming.